Experiences of having an adult sibling with a mental illness: an interpretative phenomenological analysis
- Authors: Flannigan, Raylene
- Date: 2017
- Subjects: Mentally ill -- Family relationships , Mentally ill -- Care -- South Africa , Mental illness -- Public opinion -- South Africa , Mentally ill -- Deinstitutionalization , Brothers and sisters of people with disabilities , Brothers and sisters of people with disabilities -- Psycnology , Brothers and sisters of people with disabilities -- Case studies -- South Africa -- Makhanda
- Language: English
- Type: Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/6309 , vital:21088
- Description: Mental illness has a significant impact on the life of an individual, however not only on the individual but on the family as well. A considerable amount of research has been carried out regarding the experiences of family members internationally. However, in South Africa (SA) there is inadequate information regarding the experiences of families, especially adult siblings, of individuals with a mental illness. Specifically, there is a lack of research investigating individuals’ perceptions of their brother or sister’s mental illness as well as how this affects the sibling relationship. It is for this reason that the current study aimed at exploring the lived experiences of ‘black1’ isiXhosa speaking individuals who have a sibling with a mental illness. The study employed Interpretative Phenomenological Analysis (IPA) as its qualitative approach. A sample of five participants between the ages of 20-50 years was selected through purposive and snowballing sampling techniques. Semi-structured interviews were utilised and were transcribed and analysed based on the IPA framework. The analysis of the participants’ transcripts provided three master themes, which are supported by subordinate themes. The master themes are: 1) experiencing the sibling as a burden post diagnosis, 2) positive experiences from the sibling’s mental illness, 3) participant’s experiences of their sibling’s treatment and the mental health care system. Participants experienced financial burden as well as the burden of caregiving as a result of their sibling’s mental illness; these are understood as being subjective and objective burdens. While no change was experienced within the sibling relationship, the siblings’ mental illness was experienced as affecting the sibling relationship due to the socioeconomic status of the participants and stigma. The findings support and expand on the growing knowledge of adult sibling relationships and mental illness.
- Full Text:
- Date Issued: 2017
- Authors: Flannigan, Raylene
- Date: 2017
- Subjects: Mentally ill -- Family relationships , Mentally ill -- Care -- South Africa , Mental illness -- Public opinion -- South Africa , Mentally ill -- Deinstitutionalization , Brothers and sisters of people with disabilities , Brothers and sisters of people with disabilities -- Psycnology , Brothers and sisters of people with disabilities -- Case studies -- South Africa -- Makhanda
- Language: English
- Type: Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/6309 , vital:21088
- Description: Mental illness has a significant impact on the life of an individual, however not only on the individual but on the family as well. A considerable amount of research has been carried out regarding the experiences of family members internationally. However, in South Africa (SA) there is inadequate information regarding the experiences of families, especially adult siblings, of individuals with a mental illness. Specifically, there is a lack of research investigating individuals’ perceptions of their brother or sister’s mental illness as well as how this affects the sibling relationship. It is for this reason that the current study aimed at exploring the lived experiences of ‘black1’ isiXhosa speaking individuals who have a sibling with a mental illness. The study employed Interpretative Phenomenological Analysis (IPA) as its qualitative approach. A sample of five participants between the ages of 20-50 years was selected through purposive and snowballing sampling techniques. Semi-structured interviews were utilised and were transcribed and analysed based on the IPA framework. The analysis of the participants’ transcripts provided three master themes, which are supported by subordinate themes. The master themes are: 1) experiencing the sibling as a burden post diagnosis, 2) positive experiences from the sibling’s mental illness, 3) participant’s experiences of their sibling’s treatment and the mental health care system. Participants experienced financial burden as well as the burden of caregiving as a result of their sibling’s mental illness; these are understood as being subjective and objective burdens. While no change was experienced within the sibling relationship, the siblings’ mental illness was experienced as affecting the sibling relationship due to the socioeconomic status of the participants and stigma. The findings support and expand on the growing knowledge of adult sibling relationships and mental illness.
- Full Text:
- Date Issued: 2017
“I won’t say I feel happy or sad”: experiences of siblings of young disabled people in disadvantaged socio-economic circumstances
- Authors: Foote, Tamlyn Lou-Ann
- Date: 2017
- Subjects: Mentally ill -- Family relationships , Mentally ill -- Care -- South Africa , Mentally ill children -- Care -- South Africa , Brothers and sisters of people with disabilities , Brothers and sisters of people with disabilities -- Psycnology , Brothers and sisters of people with disabilities -- Case studies -- South Africa -- Makhanda
- Language: English
- Type: Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/7774 , vital:21296
- Description: The impact of having a disabled sibling has been well researched in first world countries, revealing complex and varied results. However, in disadvantaged socioeconomic contexts, where disability has been found to be more prevalent, and where arguably, the functioning and quality of life of a disabled person is more likely to be affected by an impairment, very little is known about how siblings of young disabled people are affected. In response, this qualitative study explores the experiences of five, isiXhosa speaking adolescents, living in Joza Township, Grahamstown, who have a brother or sister with an intellectual, physical or developmental impairment. Semi-structured interviews were conducted and an interpretative phenomenological analytic approach was utilized to ascertain how the participants make sense of their worlds in relation to their sibling’s disability. Specifically, this research aimed at developing an understanding of how the participants experienced their family climate, self-concept, interpersonal relations and daily living in relation to their disabled sibling. The results of this study reveal a prevailing sense of incongruity experienced by the participants, although there are variances between their experiences. While family climate was largely experienced as warm, the participants were ambivalent about their relationship with their mothers who are experienced more as providers than nurturers. The participants described oscillating between feelings of protectiveness and alliance, and responsibility and sacrifice toward their sibling. A high incidence of incongruity pertaining to their sense of self was noted; this was described as impacting on their interpersonal relations where an underlying sense of negative public perception in relation to the disability is perceived. Although the participants expressed feeling supported within their homes, it was evident that they experienced little support from peers or the community at large. Four out of the five participants did not report experiencing a sense of deprivation, despite their socio-economic contexts and described a day-to-day existence that allows for their needs to be met. This included adequate time during their day to pursue personal interests as opposed to their time being spent taking care of their disabled sibling or assisting their parents, who may be overburdened due to the added care and responsibilities a disabled child might require. Furthermore, it is suggested that the incongruity experienced by the participants could be the result of various factors including age, gender, birth order and the nature of their sibling’s impairment. On the basis of the findings of this research, it can be concluded that the experiences of siblings of young, disabled people living in disadvantaged socioeconomic contexts cannot necessarily be described as being positive or negative, but are highly nuanced. In addition, the participants to some extent experience disability by association and are lacking in adequate support and opportunities to discuss their unique challenges. These insights serve to better inform disability studies in disadvantaged socio-economic circumstances. These findings are in accordance with earlier research.
- Full Text:
- Date Issued: 2017
- Authors: Foote, Tamlyn Lou-Ann
- Date: 2017
- Subjects: Mentally ill -- Family relationships , Mentally ill -- Care -- South Africa , Mentally ill children -- Care -- South Africa , Brothers and sisters of people with disabilities , Brothers and sisters of people with disabilities -- Psycnology , Brothers and sisters of people with disabilities -- Case studies -- South Africa -- Makhanda
- Language: English
- Type: Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/7774 , vital:21296
- Description: The impact of having a disabled sibling has been well researched in first world countries, revealing complex and varied results. However, in disadvantaged socioeconomic contexts, where disability has been found to be more prevalent, and where arguably, the functioning and quality of life of a disabled person is more likely to be affected by an impairment, very little is known about how siblings of young disabled people are affected. In response, this qualitative study explores the experiences of five, isiXhosa speaking adolescents, living in Joza Township, Grahamstown, who have a brother or sister with an intellectual, physical or developmental impairment. Semi-structured interviews were conducted and an interpretative phenomenological analytic approach was utilized to ascertain how the participants make sense of their worlds in relation to their sibling’s disability. Specifically, this research aimed at developing an understanding of how the participants experienced their family climate, self-concept, interpersonal relations and daily living in relation to their disabled sibling. The results of this study reveal a prevailing sense of incongruity experienced by the participants, although there are variances between their experiences. While family climate was largely experienced as warm, the participants were ambivalent about their relationship with their mothers who are experienced more as providers than nurturers. The participants described oscillating between feelings of protectiveness and alliance, and responsibility and sacrifice toward their sibling. A high incidence of incongruity pertaining to their sense of self was noted; this was described as impacting on their interpersonal relations where an underlying sense of negative public perception in relation to the disability is perceived. Although the participants expressed feeling supported within their homes, it was evident that they experienced little support from peers or the community at large. Four out of the five participants did not report experiencing a sense of deprivation, despite their socio-economic contexts and described a day-to-day existence that allows for their needs to be met. This included adequate time during their day to pursue personal interests as opposed to their time being spent taking care of their disabled sibling or assisting their parents, who may be overburdened due to the added care and responsibilities a disabled child might require. Furthermore, it is suggested that the incongruity experienced by the participants could be the result of various factors including age, gender, birth order and the nature of their sibling’s impairment. On the basis of the findings of this research, it can be concluded that the experiences of siblings of young, disabled people living in disadvantaged socioeconomic contexts cannot necessarily be described as being positive or negative, but are highly nuanced. In addition, the participants to some extent experience disability by association and are lacking in adequate support and opportunities to discuss their unique challenges. These insights serve to better inform disability studies in disadvantaged socio-economic circumstances. These findings are in accordance with earlier research.
- Full Text:
- Date Issued: 2017
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